First-Party vs. Third-Party Special Needs Trusts in Rhode Island: Rules and Setup Fees

Current as of: October 20, 2026 Wills, Trusts & Estates Rhode Island
In Rhode Island, a First-Party Special Needs Trust holds a disabled person's own money and requires Medicaid payback upon death. A Third-Party Trust holds inheritance money from relatives and avoids state payback rules completely.

Providing for a loved one with a disability requires immense care and precise legal planning. In Rhode Island, if a disabled individual receives a sudden influx of cash-whether from a personal injury settlement or a grandparent's inheritance-it can immediately disqualify them from vital government assistance like Supplemental Security Income (SSI) and Medicaid. To prevent this devastating loss of benefits, families utilize a specialized legal tool known as a Special Needs Trust (SNT).

However, not all SNTs are created equal. Depending on where the money comes from, you must choose between a First-Party Special Needs Trust and a Third-Party Special Needs Trust. Choosing the wrong structure can result in the state of Rhode Island seizing the remaining funds upon the beneficiary's death. In this guide, we will clarify the crucial structural differences between these two trusts, explain the state's Medicaid payback rules, and outline the setup fees. If you need help securing your family member's future, you can find a dedicated special needs planning attorney in our directory.

Step-by-Step Process in Rhode Island

Establishing an SNT requires strict adherence to federal and state statutes. A single misstep in drafting can render the trust invalid, exposing the assets to state agencies.

Step 1: Identifying the Source of the Funds

The very first step is determining exactly whose money is funding the trust. This dictates the entire legal structure. If the money belongs to the disabled individual (e.g., a lawsuit payout or their own savings), you must use a First-Party SNT. If the money belongs to anyone else (e.g., parents, grandparents, friends), you must use a Third-Party SNT.

Step 2: Drafting the Special Needs Trust

Your attorney will draft the trust document. The language must explicitly state that the funds are intended strictly to 'supplement, not supplant' government benefits. The trust cannot be used for basic food or shelter if the beneficiary receives SSI. It must be designed to pay for quality-of-life enhancements, such as specialized medical equipment, education, a reliable vehicle, or modified housing.

Step 3: Appointing a Qualified Trustee

The disabled beneficiary cannot manage the trust themselves. You must appoint a trustee. This can be a trusted family member, a professional fiduciary, or a corporate trust company. In Rhode Island, court oversight might be required if the beneficiary is under a legal guardianship, which involves filing forms like Form PC-2.3, Rhode Island, Probate Court, Petition for Limited Guardianship or Guardianship at a local court such as the Providence Probate Court, Providence.

Step 4: Notifying State Agencies

Once established and funded, the trustee must report the existence of the trust to the Social Security Administration and the Executive Office of Health and Human Services, Cranston (which administers Rhode Island Medicaid). Failure to properly disclose the trust using appropriate channels and forms, such as referencing it in Form DHS-2, Rhode Island, Department of Human Services, Application for Assistance, can lead to a suspension of benefits.

First-Party vs. Third-Party Special Needs Trusts

The distinction between these trusts is absolute and dictates how the funds are treated at the end of the beneficiary's life.

First-Party SNTs for Personal Injury Settlement Recipients

A First-Party SNT is created under the federal authority of 42 U.S.C. § 1396p(d)(4)(A). It is commonly used when a disabled individual in Cranston or Woonsocket wins a large personal injury settlement or medical malpractice award. Because the money legally belongs to the disabled person, the government allows them to place it in this trust to stay under the $2,000 Medicaid asset limit. The catch? While it can be established directly by the individual themselves, a parent, grandparent, legal guardian, or court, it includes a mandatory state payback provision.

Third-Party SNTs for Grandparents Leaving Inheritances

A Third-Party SNT is funded exclusively with 'other people's money.' If a grandparent in Newport wants to leave an inheritance to a grandchild with autism, they should direct those funds into a Third-Party SNT. Because the money never legally belonged to the grandchild, the state cannot claim it. When the grandchild passes away, any remaining funds can be passed on to other siblings, charities, or family members without paying a dime back to the state.

Understanding Medicaid Payback Requirements

The most critical difference lies in the Medicaid payback rule. Under R.I. Gen. Laws § 40-8-15 and federal regulations, a First-Party SNT must contain a provision stating that upon the beneficiary's death, the Executive Office of Health and Human Services, Cranston has the first right to recover all funds spent on the individual's medical care from the trust's remaining balance. As seen in complex administrative disputes and precedents like In re Estate of Manchester, 66 A.3d 426 (RI Supreme Court 2013), the state aggressively enforces its right to recover Medicaid costs. A Third-Party SNT is completely exempt from this payback rule.

How Much Does it Cost in Rhode Island?

Creating an SNT is a highly specialized area of law. You should expect the following costs:

  • Attorney Fees: Drafting a custom First-Party or Third-Party SNT typically costs between $2,500 and $5,000. If court intervention is required (such as establishing a guardianship), costs can exceed $7,000.
  • Trustee Fees: If you hire a professional trustee, they generally charge 1% to 1.5% annually of the trust's total assets.
  • Tax Preparation: Trust tax returns (Form 1041) usually cost $500 to $1,000 annually to prepare.
Trust FeatureFirst-Party SNTThird-Party SNT
Funding SourceBeneficiary's own funds (e.g., settlement)Family member's funds (e.g., inheritance)
Medicaid Payback Required?Yes, mandatory upon deathNo, passes to family
Age Limit to EstablishMust be created before age 65No age limit

How Long Does the Process Take?

If there is no court involvement, a Third-Party SNT can be drafted and executed in 2 to 4 weeks. A First-Party SNT funded by a lawsuit settlement may take slightly longer, often 4 to 8 weeks, as the personal injury attorney, the probate court, and the estate planning attorney must coordinate the transfer of settlement funds directly into the trust.

Frequently Asked Questions (FAQ)

Can a disabled person set up their own First-Party SNT?

Yes, following a change in federal law in 2016, a mentally competent disabled individual can now establish their own First-Party SNT without needing a parent, grandparent, or court to do it for them.

What happens if the beneficiary inherits money directly?

If they inherit money directly, they will likely lose their SSI and Medicaid. The money would then need to be moved into a First-Party SNT, subjecting it to the Medicaid payback rule, which could have been avoided with a Third-Party SNT.

Can the trust pay for a vacation?

Yes. An SNT can generally be used to pay for a companion to accompany the beneficiary on a vacation, as well as the beneficiary's travel expenses, as this enhances their quality of life.

Is an ABLE account the same as a Special Needs Trust?

No. An ABLE account is a tax-advantaged savings account with strict annual contribution limits, while an SNT can hold unlimited amounts of money, including real estate. They are often used together.

Where can I find an attorney for Special Needs Trusts?

You can find compassionate, highly trained estate planning and elder law attorneys in Rhode Island by searching our US Lawyers directory.


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